I wrote this “poem” a few weeks ago in response to an event that happened with my dad. He’s been going through a lot of changes lately and, as a family, we’ve been struggling trying to seek medical assistance and a diagnosis. Yesterday, he was finally diagnosed with Alzheimer’s Dementia.
The following is less a poem and more or less a vomiting of my feelings onto the page. It’s raw and unedited and I plan to leave it that way.
I’m going to see my dad tomorrow. So I’m sharing this with you now as a way of getting it, along with some of the feelings and fears it represents, off of me as I move with my family into the future and try to figure out what this diagnosis means for my dad, for my family and for me.
Untitled by Val Zane
Itâs not so hard for me to think of you as crazy considering youâve always been completely nuts
For as long as Iâve known you. Thatâs right. Forever. Or for my forever anyway.
âThey either love him or hate him,â I always say.
I bet you donât even know that I say that about you. Well, I do.
But who cares what they think anyway? Or what I think or say for that matter.
Just tell me another joke. I need to laugh.
What happened to the eight again? Or was it the nine?
No wait. Now, I remember. It was the seven who ate nine and ten.
But when you tell it, it always sounds so dirty.
Iâll never be able to tell it like you.
Itâs like asking a stranger for directions.
âExcuse me.â Smile, nod. âMake a left at the McDonaldâs?â Uh-huh. âThanks.â Smile again, then wave cordially and drive away, when Iâd rather just skip ahead to the part when I call you.
âYou shouldnât talk to strangers,â youâd say with a quip that no oneâs stranger than you.
Itâs certainly strange how you always know how to find me and guide me home
Even from a payphone in the middle of nowhere. Do you remember payphones?
You were my compass before GPSs were ever invented.
With you Iâm never lost.
But without you?
Mom said she spoke to the doctor.
Undiagnosable.
Well, sure, that goes without saying because youâre nothing if not interesting
Isnât that what you always say?
Maybe you could use your map and point them in the right direction?
Oh I donât know. Itâs probably in the trunk of your car with your wallet and your keys.
They shouldâve said: âWe donât know but whatever this is, it sucks.â
When they came and took you away the other day, I wasnât there. That sucked more.
Maybe itâs your medicine. Or just old age? Dementia? Alzheimer’s? Senility?
Itâs funny but I still see you and hear you the way you were. The way youâll always be to me.
Or maybe thatâs not so funny after all. See, youâre not the only one whoâs confused.
Remember that time we were talking and walking together hand in hand and you stumbled and tumbled ass-over-teakettle, then stood back up and kept on walking like nothing happened?
Thatâs the stuff legends are made of!
Youâre my hero. And anyone who says thatâs clichĂ© is just another asshole.
Fuck âem if they canât take a joke. Right?
Is that what this is, just another one of your jokes?
Itâs like youâre faking it, pulling a prank, playing a game.
Are you testing me, like way back then when you tested me on the state capitals?
Well the jokeâs on you because Iâve forgotten most of those too. Have you?
Maybe itâs not me youâre trying to trick. Maybe itâs him. The hooded dude with the grim expression. Do you honestly think if he thinks youâre crazy, then maybe heâll walk on by?
Iâm not sure thatâs how it works, but I guess itâs worth a try.
This just doesnât feel real to me. Why do I refuse to believe what everyone else sees?
Even the butts of your best jokes are laughing at me.
But thatâs okay because they donât know you like I do.
Youâre the opposite of⊠or was it the epitome of charming?
âBut looks arenât everything,â youâd say.
Tell me again about the man from Nantucket who uses his bucket for God knows what
And that thing he used to say⊠what was it again? Oh, does it even matter what he said?
When, in the scheme of things, Iâm trying to recall all the things youâve said along the way
All the laughs weâve shared, your words of wisdom and the lessons youâve taught me.
But I canât. Oh great. Now Iâm crying. And through all those empty threats, this is the first time youâve actually given me something to cry about.
In a way, itâs like youâre already gone. Or not yet gone but already forgotten?
How is it I can recall all of the pointless, useless information?
Cross on the green, not in between. Or how E equals MC squared. All the things that Rob Base knows about and the ingredients to that cheesecake Mom loves so much. How flared jeans make my butt look small(er) or your secret for making the worldâs best pancakes.
I remember it all but Iâm forgetting you? Maybe Iâm going crazy, too.
The irony is that if you werenât stuck on a loop right now youâd be mad at me for making this about me. But donât even try to deny the truth because we both know thatâs what we do.
Youâre the one who taught me ten and two. Donât you remember?
And the best advice anyoneâs ever given me: âIf you feel like youâre going to fall, fall on your ass.â
And you know what? I still do that all the time.
Fall on my ass that is.
You asked me to write your stories down but theyâre your stories, not mine.
Iâve given you books, journals, voice recorders.
Damn it, Dad. I donât want to be mad at you butâŠ
Couldnât you grab a spare square from the diner or that coffee truck you loved so much?
Remember those road trips when weâd just talk? The turnpike was so beautiful at night.
Or that time we went out of the way to cross the Brooklyn Bridge just because?
Or when we drove straight from Philly to Florida and I read every single sign while Mom slept?
You said it was my responsibility to keep you up. See, you taught me about responsibility.
Itâs so easy to remember your stories when Iâm in them but I guess those are our stories
But the others? The ones which came before me?
Well, this is precisely why I wanted you to write them down!
Not just for me. For you. For mom. For the princess who calls you âPah-Pah.â
âBut I donât write,â you said. âThatâs what you do.â
And youâre right. Youâre always right. And in a way, youâre the reason why I write.
But to write your life story is⊠well itâs impossible.
âNothingâs impossible,â youâd say. âIf you work hard enough for it.â
Shut up, Dad!
No, wait. I take that back. Iâm sorry. Please keep talking. Start from the beginning.
Because I need your help. Thatâs why.
Because I canât tell your storiesânot like you do. At least not without you.
Oh no, youâre fading again.
So you have the stories and I have the pen. Is that how this works?
Well, then I think youâd better start talking because youâre running out of time
And Iâm running out of ink.